Those gatherings are a lot of fun. Thanks 4 putting into words what many celiacs feel! I get hot flashes and dumping syndrome from soy oil, soy protein (tofu), raw soy beans (edamame), and “non allergen” soy oil, that chipotle uses (even if I order the GF menu items at that place, I still have issues). I have had 3 great dining experiences there so far and I cannot say enough about how gracious & knowledgeable the staff is (again, this is the Palm Beach Gardens, FL location). Let’s face it, “gluten-free” is a FAD right now. Im sorry GF Dude. I was sorry to hear about Gluten Dude’s experience at PF Chang’s. The key word here is careful. I don’t know what is up with that – seriously, it is baffling to me If they go as far to have a GF Menu, they should by all reasoning be the safer options out there- for me unforunately this has not been the case .. I'm going to check out the site you suggested. A word of warning....this is one of those high end, small portion type of places. I have been at the PF Chang’s in Iowa (yes, sadly there is only one) and of the less than a handful of times I’ve eaten there at least once (I am wondering if it might have been twice) my food was brought out on a non-special plate, the wait staff said it was fine and then the manager swoops in and takes the offending plate away. Like the OP, I will not be back. Oh well. Let’s be real here: This blog just stopped me from going over the edge. Hi Regular soy sauce usually only contains gluten in the form of wheat. we gave an extra big tip and went home not worrying! It is wonderful to know we are not alone and that we can have like-minded people who can say straight up that having celiac disease sucks. I can't believe it. I felt fine eating it, but I DID get stomach pain afterwards. From the moment I walked through the door, I felt comfortable that they understand the serious nature of celiac. She has gone to diffrent stores and diffrent menu items. Your take on things is amazingly refreshing. Asian Box, Zest Bakery, Pica Pica, and Grease Box in the Bay Area are all dedicated, caring, welcoming, and on a mission. But maybe they were prepared on a counter where lemongrass was cut up, etc… So basically, you may be having a problem not only with incorrect sauces, but cross-contamination. So for my birthday, I made reservations for the family at the closest (40 minutes away) Chang’s. The dragon tea is quite nice to share. Lol just don’t have the funds or insurance to see a therapist at the moment. I will forever be grateful for people like you and the rest of the amazing gluten free community. I’m shocked they didn’t invite you back on them to get your confidence back??? The support on this page is so good for me. I still have vivid memories of that first evening out…. It really means so much! It was my second time there and I ordered the egg drop soup and had the ginger chicken….all GF. Except Domino’s of course :). The incident will be addressed with our entire staff and the restaurant is being audited on their Gluten Free procedures today. October 2019 Announcement: I am creating a mobile app specifically for the celiac community!! to hear about your experience at PF Chang. Sometimes soups aren't gluten-free because their broths contain flour … My life is better for your efforts. negative endoscopy and colonoscopy-december 2007, "At the end of the day, the fact that we're still here is reason enough to celebrate.". I was really sick, and couldn’t differentiate the symptoms to say if any were specifically gluten-related. As for the main course, I can't even remember what I ordered because it was that unimpressive. Especially since it sounds like you have a great palate. Advice? Chang's logo. You reflect such a realistic view on this disease......while no one else understands, you and the people who gather here, make me feel just a little bit less crazy! I remember being in western Australia and ringing my fav Chinese take away. Thank you SO much! . The last time I was there, a year ago, I watched servers drip gluten filled sauces all over “gluten free” plates at my table, same as they did at every other table. It is a special occasion restaurant because it is pricey but they have an extensive gluten-free menu, which is not listed on their website. I know, hon! When I get upset trying to explain he gets very very impatient and immature and replies with let’s just not go out ever then. One time, my food came out on the wrong plate. I'm glad to meet a sane individual in the same boat as me. I avoided that. I have another revelation. If they have Heinz ketchup I’ll put that on the steak. My doc told me it was okay. When I felt like treating myself at lunch once a week, I would go and order lemon chicken, egg drop soup and other things…funnily enough, like you and other people on this thread, I was fine the first couple of times, but soon began to notice I didn’t feel so great when I went there after that, and I wondered why? Though I don’t understand why Outback just doesn’t have a GF button o their computer. I'd eaten at PF Chang's a few times before, but I had always gone with the GF street noodles (which are pretty dang tasty). Eating out can be risky, of course, but I just wanted to relate my positive experience for anyone still reading the thread. The servers there seemed very aware and immediately when my friend (a fellow celiac) and I asked for the GF menu he whisked the soy sauce away as if it would attack the diners. I won’t try that again! However, I do not get sick if I get glutened so I have no way of telling when I accidentally eat gluten. I totally understand what you are saying about the training aspect but I was miffed that it was such an underwhelming experience, especially when many people rave about the place. As a matter of fact, the next month's gathering is for gluten-free Indian, just outside of Pawtucket, R.I. I agree…same with celiac. There is indeed an inherent risk any time we eat out. Also, she happens to be one of the ‘lucky’ Celiacs who doesn’t have any symptoms…. Recognizing the signs of celiac and understanding that going gluten free does not fix everyone and every symptom associated with the disease. Did I Overreact to this ‘Gluten-Free Insurance’ Press Release? I checked out their website for the location here and e-mailed him yesterday, haven’t heard back yet. This site just turned my day around. But I agree that they should have done something. Perhaps you should contact corporate about the location you visited. ), I have found that the more questions I ask that they either can’t answer or can’t answer well, the less likely they are to balk at me bringing my own food. It’s all I can ask for. Not sure how a restaurant would react. Thank you for all your struggles and your fight for us celiacs. :). Therefore, my reaction is not being caused by dumplings coming into contact with shellfish. Done. I appreciate someone speaking honestly and from the heart about the down and dirty of celiac. I’ve eaten multiple times at Changs in downtown Chicago & never had a problem. EVERYTHING DEDICATED COSTS MORE: flours, starches, pastas, etc. Some vinegars are ok, like apple cider or rice vinegar made in a dedicated facility, dedicated equipment. do you think celiac was around in ancient times? ‘oh we have loads’ was the chirpy reply. I just paid $10 for a dish of heavily over sauced, seasoned and salted broccoli and carrots. They like Chipotle’s, Outback, Olive Garden, etc, have their meats (proteins) packaged and seasoned by large processors. I have Celiac Disease too. Response: Our gluten free menu is safe for someone with celiac disease. IHOP Now has Gluten Fr…………iendly Pancakes. I know it was a larger group and if you were not seated near me, we probably missed each other. Hey Dude, Not worth the chance that someone doesn’t understand. What’s a Celiac to do? The next time, it’s good, but the time after that? Just to clear some things up with some people that obviously have no idea: there is absolutely no MSG in any of our food. I know I can’t wallow and feel sorry for myself forever but I literally bawled my eyes out reading your blog because someone finally was being honest and understood and wrote the truth. The labeling law was very helpful, but they still don’t label barley and rye. In the street noodles, it's probably the kind of soy sauce. Please consider supporting the project. Suffering is a strong word implying no relief from pain or hardship. Pretty much everything has sauce, and most sauces have soy sauce. I went at peak busy hours, on a weekend with a large group and they still were great and I never got sick. It says a lot about a person or people who have no empathy or compassion for their loved one’s ills. Sounds good. That is SO disappointing. Ended up with a green salad with half a quarter of a tomato and no dressing. Take note and give’m Hell! A Parade that Includes People Throwing Flour? Thank you from the bottom of my heart. I always use the word “severe” when I eat out, hoping it gets them to take me a bit more serious. The only truly gluten-free beer available in this area (York-Lancaster-Harrisburg, PA) is Redbridge. I took a mouthful of heaven. I have never had a problem with them until this weekend, when I noticed that my burger had something on the bottom, when I turned it over it had blue cheese on it! Excrutiatingly painful. Knowledge is power, or something to that effect. We know it isn’t easy going out in public, but our research has shown that there are a […] ONE BITE of the steak and I could tell it was NOT going to ‘agree’ with me. The doctor said I was just treated incorrectly over the years. Thank you, thank you, thank you. I am lucky to live in an area where gluten-free dining is becoming the norm at many restaurants so I can't complain. Neither my husband and I are working at the moment. :). One of the four Managers is right there in the kitchen to see every thing is done properly. I just want to say that you rock. Everything is coming out at light speed and with EXTREME pain. Gluten ALLERGY?! Is PF Chang’s safe for celiacs? Celiac Disease & Cross-Contamination: Tips and Tricks. It was such a relief to hear other voices and experiences from people I could relate to. i use to have the same problem, and then I realized that I ALSO have a soy intolerance/allergy. THANK YOU!!! I have been gluten free for over 10 years. I have only ordered singapore street noodles or fried rice. 60462 (708) 675-3970 They are very, very aware of which of their foods in the deli have gluten, dairy, and soy so I feel safe eating there. I’ll never eat there again. It’s just the nature of the beast! PF Chang's China Bistro. in Coping with Celiac Disease, By This site places cookies on your device (Cookie Settings). My meal comes out. The crispy shell gives way to a warm filling of cabbage, carrots and meat mingled with the nuances of soy sauce and sesame oil. Sounds like they will never change, two against one mentality. in Post Diagnosis, Recovery & Treatment of Celiac Disease, By Hey, maybe it’s a good thing we can’t eat there. Just me. I'm steering clear for quite a while. View HONcode Certificate. While dining there with my family and niece who is legume allergic, we learned that the sweet potato is “wrapped in foil and THEN has oil applied to it” this made Hubby realize that they MUST deep fry the sweet potatoes. I disagree that people with celiac should be responsible for investing a great deal of time and maybe money into sorting out whether restaurants are safe or only pretend to be to attract new customers. Finally! I got a little rice, but only because I knew it had no wheat in it (other places have wheat in rice, I know “WHAT?”! I asked the waitress about it and she said they put the wrong sauce on it. And to be honest, I get slight reactions almost every time I go. I actually am an employee at PF Changs and have been for several years. It is this minute difference that causes some of his work friends to lunch the way it normally... ” but manageable ailment piece in my food came out as we were so.. 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